Long overdue Megan update with some GOOD news!

I can't believe it has been almost two months since I have updated. Things have been super crazy around here. I have been trying to sit down and type an update for a while but getting thoughts together and typing them has been harder than usual. So here you go:
Megan: She has been doing good on and off. We have days of pain for her, the cold weather has proven to be very rough on her little muscles and at times it is more than she can handle. She has been struggling on and off with an infection. Most of you know that a simple cold is never simple for Megan. It comes with many other things. Her exhaustion has also taken over at times. We would have days where she would do nothing but sleep and then days where she couldn't sleep at all. The new thing we have is headaches. She has been complaining of her head hurting lately. Her doctors thought early on she might have migraines but it was hard to tell. I guess about a month ago she had one that there was not guessing about. She couldn't handle the light, sound or being touched. She got very sick to her tummy too. She would just lay around with her Piglet ice pack on her head saying how bad her head hurt. She is on anti-biotics now for an infection. Her and Ian like to pass things back and forth. Right now we are just watching her lungs to make sure they stay clear so we don't have a repeat of May. She is however, really enjoying all the Christmas decorations and listening to non-stop Christmas music. Friday I ordered the best T-shirt for Megan. It says "Yes, I am a princess, my Father is the King of Kings!" Could that be any more perfect?

We have great Sunday school lessons. I always walk away with something pretty amazing to ponder. A few weeks ago we had one particular lesson that has stuck with me for a while now. It was titled "What If?" I just wanted to share with you a couple of things that really hit me hard. One of the questions was What if we want His blessings more than we want Him? Thinking about that really made me sad. I have said this before but it is so true. No matter how many times I say, God, Your will be done, I will also say in the same breath but please Lord take care of this (the way I want it to be taken care of) and I would really like this and that kind of thing. What if, instead, I would say, Lord, no matter what, I just want to know You more and desire more than anything to seek Your face. I could have nothing on this earth, but I will always have Jesus. That is everything and all I need. It is pretty easy to say but a little bit harder than you think to actually act out. Let me give you an example: I will pray Lord, I know we are going through all this with Megan for a reason, what ever You want Lord, as long as it is Your will, that is exactly what I want. When Megan gets sick or just on an everyday basis, you think, Lord, come on, please take this away from her. Don't make her go through this anymore. Just let her be a normal child and live a long, healthy life with no more struggles. That kind of contradicts what I had previously said though, doesn't it? What if He never heals Megan on this earth? What if He chooses to keep Megan here but she continues to struggle the rest of her life? What if we don't get the funding we need to pay for her expenses? What if? He still has blessed beyond anything that we could ever possibly deserve. Jim and I have our salvation. We will never have nothing! Everyday that we wake up is a pure blessing no matter what He has in store for us that day. And of course you all know the way He has used Megan to touch so many people. Of course He knows that we would love nothing more than to find a cure for this disease. Sure he knows we would rather Megan not have to deal with pain and a feeding tube. Would we trade all that though? Are you kidding? No way! To miss out on all this, sorry guys, as much as we have hurt in the last 2 1/2 years, I can honestly say, I would not change a thing. None of this is easy but that's why we have Jesus. I couldn't imagine going through this without Him. Even without all of this, I couldn't imagine going through a day without Him. No matter your circumstances, no matter your trials, He is patiently waiting and will walk and carry you.

I have to tell you some pretty big news we received as well. Megan was approved for Katie Beckett Medicaid. This is such a HUGE deal! It didn't take nearly as long as we thought. Of course, He was right here with us the whole time. We sure do serve an awesome God, huh? Merry Christmas you guys, remember the real reason for the season. And once Christmas is over, remember the real reason for every day. God Bless you guys!

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JR