Megan Update

This was posted last night, so the issues took place yesterday. Still don't have a clear outlook as to if it has improved today. We didn't have to go to the ER, so that a perfect start.

Ok, so we need some prayers tonight. Megan has had a rough day today. It started out this morning with her waking up after 11 hours of sleep with hardly anything in her diaper. Her nurse and I became a little concerned as Megan has never done this before and with her being on a drip there would be no reason as to why she could not wet her diaper. She is pretty sick right now but in total Megan fashion, she does not show it very much. She went to the doctor yesterday and they said that her Ian both are all junked up. Poor Ian though, he does have the worst of it. He was running a 102 fever today. We got it to go down and then it came back tonight. He took a nice bath and as I was changing him he said he loved the purple and blue stars, which meant he is very sick and very tired. Right now his temp seems to have come down again. Anyways, we went all day with Megan and very small wet diapers. Not nearly enough to what she usually does. So our nurse advised it was time to call the doctor. Her doctor advised to keep a very close eye on her and try and get as much liquid in her as possible. She would not hardly drink anything today or yesterday. We think it is her throat. But we are trying everything to get her to take something extra. He said that if she does not have a good wet diaper in the morning then we will need to take her to the ER to get fluids and see what is going on. Mito kids can dehydrate so fast so it is nothing to mess around with. But she also has kidney issues so we don’t need that to be a problem either. To top it all off though, Megan had a horrible time with diarrhea tonight. We are just praying it is a fluke thing and maybe it is because she is not feeling well and that is how her body is reacting. Thankfully our nurse will be here tomorrow to keep an eye on her too. Oh, we received a call regarding Megan and Ian’s surgery. They will both be operated on May 1st in the morning time. We pray that this will help them both out tremendously.

Jim’s brother, Michael, moved in with us about a month ago. It was so funny because the kids immediately thought it was cool that he was here. Well it didn’t take long for little miss Megan to hook him around her finger completely. All she has to do is call his name and he is right there ready for whatever request she has for him. Today he came home and she was all excited to see him just like always. She wanted her usual kisses and hugs, even though she felt horrible. He said he was so excited that he had been able to be here to witness so many things with Megan because he felt like he would have missed out on so much. Then he turned to me and said that he was totally in love with her. It brought tears to my eyes. We know exactly how he feels. Megan is doing so many amazing things. We wouldn’t want to miss a minute. From a sweet little smile to hearing her say and sign “I Love you” all the time. We are also letting her hair grow out so she is all about her bows. She is such a big girl now. She says her prayers, and loves to say “Yeah Jesus!” Oh and if you ask her where the pretty girl is, she confidently says BOO! Her sweet little personality and spirit is so amazing. She really doesn’t want to take anything for granted. We DON’T think, "What did we do to deserve a child that has this awful disease? Why would you do that to us?" NO! We say "What did we do, Lord, to deserve such an amazing gift as Megan and our boys?" God is so good!!!

Thank you guys. I hope you have a wonderful weekend. Please pray for Megan to feel better and without a trip to the hospital.Thank you so much and have an amazing day!!!

 

 

END OF LINE

 

JR