My "procedure" and a Megan update

I had a vasectomy done last Friday...that's all I'm going to say about that (that is the procedure mentioned in the following update). Now on to Megan:

We have had a couple of things going on. First Megan went back to the doctor this morning. She had a re-check of her ears from two weeks ago. Since she had been up since 5:00 this morning I was pretty sure it was not going to be a great appointment. Anyways, they have had to put her in a new antibiotic to help with her ear infection again. This time though, they wanted to try something that could be absorbed through her intestines instead of having to go through her tummy. So we are going to try round two and hope that this clears up the infection this time. Yesterday she had kind of an off day. She had already slept about 15 hours. She woke up for a few hours then went back to bed. She woke up again for a few hours and then went back to bed for the night. I guess she was just having one of those days, you know? The other thing we are looking into for Megan is a new medicine to help with her muscle pain. Her muscle pain has somewhat increased but it is possible that this new medicine could help. Her physical therapist is the one who brought it up to us because she has another mito patient that takes it and there are other mito kids out there that are on it as well. Of course we have to talk to all of Megan’s doc’s about it too. I talked with Megan’s pediatrician this morning and they said it would be nice if Megan could take it but they are concerned on if she could tolerate it, since she has a hard time tolerating anything new, it seems like. They were also concerned on what would happen to her kidney’s if they put her on this. Since she already has issues in that area, that would not be good. It would be a thing of figuring out the dose she should take, making sure she could take it and watching her kidney function very closely. However, if it did work, that would be wonderful. It is just one of those chance things, you know? So her doc’s are all consulting on this and seeing what their opinions are and her mito doc is going to let us know.

VERY IMPORTANT INFO BELOW!!!

Please pray for Megan’s Mitochondrial doctors. We found out yesterday that the practice is dissolving and the two mito doc’s are going their separate way. One of the doctors is going to Emory and the other one is starting his own practice but we do not know when that will happen. It seems like everything is in limbo right now. I have her on the waiting list for Dr. Schoffner but it looks like it could be 2009 before she would be able to get back in to see him. That is not good since her levels have to be checked so often. Dr. Kendall said though, that because of Megan’s levels, she could send a letter to Dr. Loventhal to have him pull the labs she needs and then she could review the results for us, since they need to be checked pretty soon. We are just praying that this is an easy transition and that things will be resolved and hopefully Megan does not have to wait that long to get back in to see them. If any of you other mito families know anything about this and have any suggestions, please let me know.

This has a HUGE impact on the way Megan is treated and could effect future events. You must realize that if we can not get in to see either of these doctors, the only other choice we have is to go Boston or Cincinnati (I believe). There just aren't that many doctors that specialize in Mito Disease.

So, that is about it. Please pray that this antibiotic will work on Megan as it is not good for her to be on antibiotics like this. Also pray for continued healing for Jim as he recovers. Thank you all so much and have a wonderfully blessed week!

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JR