JollyRoger
Shared on Mon, 05/05/2008 - 12:11From Megan's blog:
There is so much to tell you but I just don't have a lot of time. Megan is still in the hospital and not doing much better. Saturday Megan had a pretty decent day only to be followed up with a very scary and awful evening. They are giving her lots of meds to help but it is just not working very quickly. She will go from feeling pretty well to absolutely miserable and lethargic. They are also doing deep suctions on her to try and get all the yuck out of her lungs. That does seem to help temporarily, although she does not like having it done. I almost gagged watching all the stuff they pulled out of her. It is so hard to see her so sick. Yesterday morning she was having a lot of trouble but her afternoon was wonderful. She was almost like her usual happy self. When she laid down for a nap though, she woke up and started choking and vomiting. This time it continued all through the night into this morning. It was so bad that she would turn purple and then basically just lay in her vomit.
Megan has now started her cyclic vomiting on top of everything else. They told us that it is part of her mitochondrial disease and unfortunately it is progressing. We are praying though, that she is able to get better so she will stop the vomiting. They are concerned that all the stress on her body and her lungs, especially with her pneumonia could cause her lung to totally collapse. The doctors have said that they are giving her everything they can and now all they can do is watch and wait and see how she responds. That is what mito disease is, a watch and wait disease. She is so sweet though. She tells all th doctors and nurses thank you every time they come in and do something to her. I will try and update more later and explain everything else. Please continue to pray. We are praying and believing Megan will pull through this soon. Thank you and God Bless.
END OF LINE
JR
There is so much to tell you but I just don't have a lot of time. Megan is still in the hospital and not doing much better. Saturday Megan had a pretty decent day only to be followed up with a very scary and awful evening. They are giving her lots of meds to help but it is just not working very quickly. She will go from feeling pretty well to absolutely miserable and lethargic. They are also doing deep suctions on her to try and get all the yuck out of her lungs. That does seem to help temporarily, although she does not like having it done. I almost gagged watching all the stuff they pulled out of her. It is so hard to see her so sick. Yesterday morning she was having a lot of trouble but her afternoon was wonderful. She was almost like her usual happy self. When she laid down for a nap though, she woke up and started choking and vomiting. This time it continued all through the night into this morning. It was so bad that she would turn purple and then basically just lay in her vomit.
Megan has now started her cyclic vomiting on top of everything else. They told us that it is part of her mitochondrial disease and unfortunately it is progressing. We are praying though, that she is able to get better so she will stop the vomiting. They are concerned that all the stress on her body and her lungs, especially with her pneumonia could cause her lung to totally collapse. The doctors have said that they are giving her everything they can and now all they can do is watch and wait and see how she responds. That is what mito disease is, a watch and wait disease. She is so sweet though. She tells all th doctors and nurses thank you every time they come in and do something to her. I will try and update more later and explain everything else. Please continue to pray. We are praying and believing Megan will pull through this soon. Thank you and God Bless.
END OF LINE
JR
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Comments
Submitted by Stone on Mon, 05/05/2008 - 12:25
Submitted by Gatsu on Mon, 05/05/2008 - 12:58
Submitted by CapnHun on Mon, 05/05/2008 - 12:59
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Submitted by Armada99 on Mon, 05/05/2008 - 13:21