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JollyRoger

Shared on Wed, 04/09/2008 - 15:00

Button, Button, whose got the button?

This is a button Stacy designed for us to wear around to help spread the word about mito disease. Very much awesome, can't wait to get mine. :)

The website she used was: www.buttonsofhope.com/

You can make them for a number of reasons. And we are stoked about doing our part to raise awareness.




END OF LINE


JR

JollyRoger

Shared on Mon, 04/07/2008 - 16:09

Follow up to this morning's post

Well, it was as we expected. Jimmie does have Pink Eye. Not good. He has to be kept away from Megan for a while, which is bad for him because he enjoys playing with her. And, the fact that he has this during his first Spring Break. Not to mention on more thing...they have no idea how long he has had it. He could have passed it to Megan over the weekend and now we have to watch Megan VERY closely to see if she develops symptoms. If so, it's a dash back to the doctor's office.

JollyRoger

Shared on Mon, 04/07/2008 - 16:09

Follow up to this morning's post

Well, it was as we expected. Jimmie does have Pink Eye. Not good. He has to be kept away from Megan for a while, which is bad for him because he enjoys playing with her. And, the fact that he has this during his first Spring Break. Not to mention on more thing...they have no idea how long he has had it. He could have passed it to Megan over the weekend and now we have to watch Megan VERY closely to see if she develops symptoms. If so, it's a dash back to the doctor's office.

JollyRoger

Shared on Mon, 04/07/2008 - 11:27

Megan Update

I will, most likely, post more than one of these today. Wasn't a bad weekend, just a busy one. Now with Jimmie's possibility of Pink Eye, it may get extremely busy.


JollyRoger

Shared on Mon, 04/07/2008 - 11:27

Megan Update

I will, most likely, post more than one of these today. Wasn't a bad weekend, just a busy one. Now with Jimmie's possibility of Pink Eye, it may get extremely busy.


JollyRoger

Shared on Fri, 04/04/2008 - 16:03

Megan Update

This was posted last night, so the issues took place yesterday. Still don't have a clear outlook as to if it has improved today. We didn't have to go to the ER, so that a perfect start.



JollyRoger

Shared on Fri, 04/04/2008 - 16:03

Megan Update

This was posted last night, so the issues took place yesterday. Still don't have a clear outlook as to if it has improved today. We didn't have to go to the ER, so that a perfect start.



JollyRoger

Shared on Fri, 03/28/2008 - 13:33

Cardiologist appointment

Good afternoon! We are home from our visit with the cardiologist. Let me tell you that this doctor is wonderful as are everyone in that office that came in contact with Megan. I am so thankful for them! Megan had lots of work done on her today. I must tell you that she was AMAZING! Jim and I could not be more proud of her. She helped the nurse take the stickers off of her when she had her EKG done and she tried to help the nurse with her ultrasound when they did her Echo.

JollyRoger

Shared on Fri, 03/28/2008 - 13:33

Cardiologist appointment

Good afternoon! We are home from our visit with the cardiologist. Let me tell you that this doctor is wonderful as are everyone in that office that came in contact with Megan. I am so thankful for them! Megan had lots of work done on her today. I must tell you that she was AMAZING! Jim and I could not be more proud of her. She helped the nurse take the stickers off of her when she had her EKG done and she tried to help the nurse with her ultrasound when they did her Echo.

JollyRoger

Shared on Thu, 03/27/2008 - 14:26

Megan Update

What a week! It seems like it has been one thing after another. We started with a lovely day of Megan leaking out stomach acid and what appeared to be potty and various other things that made all of us gag. We then received Megan’s blood tests back that revealed that her levels had once again changed pretty dramatically in just a month. Megan is a bit anemic. Right now we are going to watch her very closely but if it continues then they will most certainly have to take action.

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